Jump to content

Suicidal again. Non stop facial nerve pain for 2 years


Lostone2018

Recommended Posts

Dont want to talk much....running out of resources.. No one believes me yet i read of similar ..  Neuropathic pain...itching crawling tingling burning...every second of every day ..for 2 years...feels like face leaking at times.. No medical believes.. 

Lost my closest love..  All after asssulted with sloppy intentional kiss from stranger who intended on hurting me with hsv ...  

Its killed my beautiful heart... 56 male :( 

Link to comment
Share on other sites

9 minutes ago, Lostone2018 said:

Dont want to talk much....running out of resources.. No one believes me yet i read of similar ..  Neuropathic pain...itching crawling tingling burning...every second of every day ..for 2 years...feels like face leaking at times.. No medical believes.. 

Lost my closest love..  All after asssulted with sloppy intentional kiss from stranger who intended on hurting me with hsv ...  

Its killed my beautiful heart... 56 male :(

HSV has not been documented as readily causing what you describe.

Something more common though is pressure on your trigeminal nerve often from a growth. 

What do your doctors believe it is?

  • Thanks 1
Link to comment
Share on other sites

I’m taking gabapentin it seems to stop the weird nerve pain on my big toe. Ask your doctor 

 

Mine is not that painful but it freaks me out, my body freaks me out. My heart is broken too. 

  • Like 1
Link to comment
Share on other sites

  • 2 weeks later...
On 10/8/2019 at 9:48 PM, WilsoInAus said:

HSV has not been documented as readily causing what you describe.

Something more common though is pressure on your trigeminal nerve often from a growth. 

What do your doctors believe it is?

Thanks....my Dr....ya...i cringe...Well.the very week I got sick i went to Dr because I knew.something was very wrong...Tingling.and pressure under lip..Severe headache , extreme fatigue and nausea that lasted at least 5 weeks post French Kiss from.stranger..It all started together within 36 hours of that kiss..slobbered all over my face.

And i have some immune issues so its not good for me to get sick..They believe I am high functioning Lupus already but i am.very altheltic and active..

I went to my Dr.maybe 10 times in 8 weeks...She said it was viral..then it was neuropathic then it was MS....all not so.

I know the person that kissed me has herpes because her friend told me before they left that her drunk friend was.looking for a man and sorry her drunk friend fell on me and kissed me...She said and she has herpes.

My Dr would not prescribe anything except benelyn..

I thought I have read many cases of PHN from.HSV1...yet most doctors wont acknowledge it...

It sounds exactly like PHN...and it all.started 2 days after that kiss.

Because of my immune system...it never goes away...

No Dr will.help...

All requests to see a dermatologist were declined...

I have zero medical.support and nowhere or no one to tslk to about this..

I changed my life due to this pain..

I no longer write poems or try to play guitar..  The pain is like constant itch burn sting ...pressure under lip ..all.like a prodrome symltom but never stops .

 

No medication...no medical.help..

Thanks for your reply though.....its nice...

56 year old male...only ever kissed maybe 5 women...and only 2 in last 5 years...one I let go due to this health....the other whom.i believe is the cause 

:(

Link to comment
Share on other sites

10 hours ago, Lostone2018 said:

Thanks....my Dr....ya...i cringe...Well.the very week I got sick i went to Dr because I knew.something was very wrong...Tingling.and pressure under lip..Severe headache , extreme fatigue and nausea that lasted at least 5 weeks post French Kiss from.stranger..It all started together within 36 hours of that kiss..slobbered all over my face.

And i have some immune issues so its not good for me to get sick..They believe I am high functioning Lupus already but i am.very altheltic and active..

I went to my Dr.maybe 10 times in 8 weeks...She said it was viral..then it was neuropathic then it was MS....all not so.

I know the person that kissed me has herpes because her friend told me before they left that her drunk friend was.looking for a man and sorry her drunk friend fell on me and kissed me...She said and she has herpes.

My Dr would not prescribe anything except benelyn..

I thought I have read many cases of PHN from.HSV1...yet most doctors wont acknowledge it...

It sounds exactly like PHN...and it all.started 2 days after that kiss.

Because of my immune system...it never goes away...

No Dr will.help...

All requests to see a dermatologist were declined...

I have zero medical.support and nowhere or no one to tslk to about this..

I changed my life due to this pain..

I no longer write poems or try to play guitar..  The pain is like constant itch burn sting ...pressure under lip ..all.like a prodrome symltom but never stops .

 

No medication...no medical.help..

Thanks for your reply though.....its nice...

56 year old male...only ever kissed maybe 5 women...and only 2 in last 5 years...one I let go due to this health....the other whom.i believe is the cause 

:(

 Maybe her frend Was a liar and your mind and fear couse anxiety that can do lot of stuff even a rashes nerve pains u can become sick like hell I c that once with my frend he had a spots in visionn blurred vision nerv pains rashes al over body erectile disfunction he had so many diagnoses u cannot believe at the end he end up with pills and sessions for anxiety and depresion

Link to comment
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

  • Donate

    If Honeycomb has helped you, please help us by making a donation so we can provide you with even better features and services.

  • The Hive is Thriving!

    • Total Topics
      71.9k
    • Total Posts
      485.2k
  • Posts

    • WilsoInAus
      Welcome @Marlena correct you and your partner would benefit from the type specific version of the HSV test (meaning a separate result for HSV-1 and HSV-2). I had no idea the Euroimmun or equivalent actually had a combined version, it is pretty useless given the high incidence of HSV-1. Only one thing to add is that if you are getting frequent symptoms then you can obtain a swab and have this tested for HSV and other things as well.
    • WilsoInAus
      Yeah @FirstTimeUser there is nothing in the pic suggestive of genital herpes. It seems both you and your partner have HSV-1 orally and that's actually pretty cool. It means you won't pass it to each other's genitals owing to immunity. If the two of you are concerned about genital HSV-2 then mutually test for the IgG HSV-2 and HSV-1 antibodies.
    • CHT
      Hi "firstimeuser".... let's see what "WilsoinAus" thinks but, for what's it worth, I don't see anything in your picture (or description) that looks like herpes..... it actually looks more like a scrape or follicle issue.... maybe even a bug bite.  Also, by the way, the odds of having HSV2 with an outbreak on your testicles is very low.... that is not a typical spot for an HSV2 outbreak.    Have your doctor take a look and if you want some peace of mind, get an IgG antibody test for HSV2 in about 12 weeks (takes that long for antibodies to develop).... but, again, I don't think you have anything to worry about here.... just not seeing anything herpes-related here.    take care....best of luck.
    • CHT
      Hi Marlena..... since you stated you've had "herpes on the lips" then you likely have oral HSV1, which the majority of adults worldwide have... the fact your results for HSV1/2 are positive (at least I believe that's what your results show - I don't speak Polish but, I think I'm seeing your results are positive based on the attachment you included) may simply be reading the fact that you have HSV1.... the question is whether you've contracted HSV2 in your genital area. Your description of symptoms could possibly be related to HSV but, it's difficult to verify with certainty based on your description. You may also have contracted a different type of sexually transmitted infection (STI) or a simple fungal infection.   Your doctor does not believe what he/she is seeing is HSV but, unless your doctor has experience with HSV, they could easily misdiagnose your condition.  You need full STI testing. Do you have the option to travel to a larger city in Poland where you could get an appointment to be seen by a doctor with more experience with STIs?  You really need to have an experienced doctor take a look and run tests to check specifically for HSV2 as well as other STIs.  If they can rule out HSV2 or other STIs then hopefully they can then determine what is causing the redness, itching, and swollen condition.... again, it may not be HSV2 but, you need proper testing to verify.  Have you talked to your boyfriend about all this?  Has he had any symptoms on his genitals that are suspect?  Has he taken any tests to check for STIs?   I hope you can get more definitive testing so you know what you are dealing with and how best to treat it.  If you have any other questions/concerns, please come back and let us know.... I hope this helps a little.... best of luck.... take care.
    • CHT
      Hey Jeremy.... I know only too well that emotional pain you are feeling.... I really do.... and many of us on this site also know that pain.  It's not so much the physical side of having HSV that hurts, it's the stigma and risk of rejection that stings like hell!  You have to do what you think is right as it relates to when you disclose your HSV status when getting to know someone romantically.... I just think it's best to do it relatively early, and certainly before any sexual activity.   Have you looked into dating sites that cater to those with HSV?  I know others have had some luck with meeting partners on these sites.... you don't have to worry about the "disclosure" talk nor would you obviously have to worry about passing along a virus the other person already has.... take a few minutes and search around and see if it's an option you like. By the way, by taking your daily antiviral med and using a condom, your risk of passing along the virus is down around 1.9%.... pretty good odds that if you stick to your regimen you are very unlikely to transmit the virus....keep that in mind when you meet your next girlfriend and need to have "the talk."  That statistic might help calm any concerns about contracting the virus from you. I hope you don't give up.... as tough as it can be to find the right partner, it's still worth trying.... try to stay optimistic and look into some alternate options and see what happens.... all the best.... take care.
×
×
  • Create New...

Important Information

We have placed cookies on your device to help make this website better. You can adjust your cookie settings, otherwise we'll assume you're okay to continue.