Jump to content

tingling sensations constantly


Recommended Posts

theuniversesucks

Hi , my two cents , i frequented this forum often as i had extremely strong sensations in my groin area , i had hsv2 diagnosed many years ago and had typical outbreaks decreasing over time but after a risky encounter i believed i had maybe recieved another strain of hsv2 because i started to feel these new strange constant tingling sensations . It dominated my life under the surface for a good few years .

Everything changed in nov 2019 , I went to my second Infectious diseases doctor who sat me down for 15 mins and explained that yes i was feeling these sensations that yes they were real and that yes my nerves in this area were firing like crazy and that she would perscribe amitryptline 75 mg daily for me , what she did tell me was that this was not caused by hsv2 and because her delivery was so convincing and genuine i actually started to buy into it   , she never came out and said what caused this but i could read between the lines and i came to a conclusion that anxiety probably would be the best word . Almost immediately after the apointment my symptoms started to receed before i started to even take the meds  , i have taken the medication regularly and my symptoms have pretty much dissappeared  95%.

My two cents on this is please dont live alone with this if you have nerve issues tingling but with no visible lesions  , please go and talk to professionals , doctors counsellors specialists , take action and more action and start to make the connection between your mind and these sensations , the mind body connection is unbelieveably powerful  , the sensations were 110% genuine which is why i could not divorce them from the herpes until i had this experience .

I am no expert and this is only my experience but i hope this helps somebody , i suffered immensely believeing the herpes was causing my sensations .

Peace and love 

  • Like 4
Link to post
Share on other sites
  • 1 month later...
Sunshinewillcome

I have the exact same symptoms. I was diagnosed on feb via swan after 10 years of going to many doctors and getting swabs explantions etc. My family doctor still believes all my symptoms are not related to Hsv. The community of doctors don’t know much about the other symptoms this monster of virus can do for many people suffering. I to relate with all the tingling painful all over body. And question am I shedding the virus. I have 2 children and scars to death from passing this to. I just want to feel normal for once and not focus on my pain. It had definitely taken a toll on my mental health. It changed me completely . I hope we can relief soon. I’m on antivirals and are doing anything. Don’t know hat dosage to take anymore. 

Link to post
Share on other sites
  • 5 weeks later...

So happy for you.  
 

I went to the dermatologist today because I feel that it has gone to my face.  Yeah, diagnosed me with rosacea and said no herpes in face.  That’s nice.  
 

ive been taking valtrex for approx 15 years.  No decrease in tingling, nerve pain a lot and groin skin folds that are occasionally shiny and sometimes moist with pain depending on whether I’m wearing underwear or sheet covering.  
 

over the years I have gone to primary care doctor, three derms and one infectious disease.  
 

I have absolutely no relief and no one has a clue.  
 

My face has white pus filled like zits occasionally.  My pores on face on turning dark in places from infection, unless I use an exfoliator, which I’m scared to as it seems to be spreading.  
 

does anyone have any suggestions otherwise.  
 

I have a high stress job and am prone to anxiety despite Wellbutrin and occasional Xanax.  
 

thanks! 

Also tingling across entire face a lot of times 

Link to post
Share on other sites

Forgot to also mention.  Lesions that improve but never go away, stay white in color, under skin, with pus underneath but no zit looking raise of skin.  
 

also have white spots on facial lips that derm said are fordyce spots.  I think he is wrong.  
 

none of these symptoms goes away.  Once in a while have an actual normally described typical herpes raise inflammation on a red base on buttocks near rectum, but otherwise no other traditional marks.  
 

 

 

Link to post
Share on other sites

I have been diagnosed hsv2 more than a year ago. Still feel nerve pains all over randomly. Taking valaciclovir makes better but not completely. It's definitely nerve pain. Have you guys all tried valacixlovir? I'm taking one twice a day everyday. My neck is stiff arm still a bit in pain sometimes but definitely better than when I stop taking them.

Link to post
Share on other sites
On 6/1/2020 at 2:13 PM, Pookie15 said:

also have white spots on facial lips that derm said are fordyce spots.  I think he is wrong.  

You are definitely not the first person on this forum to bring up white spots showing up on your lips after getting a herpes infection. 

Link to post
Share on other sites
17 hours ago, WSX said:

You are definitely not the first person on this forum to bring up white spots showing up on your lips after getting a herpes infection. 

Maybe, but has anyone had them to where they never went away?  

Link to post
Share on other sites
  • 2 weeks later...
On 6/6/2020 at 4:02 AM, Misterx said:

I have been diagnosed hsv2 more than a year ago. Still feel nerve pains all over randomly. Taking valaciclovir makes better but not completely. It's definitely nerve pain. Have you guys all tried valacixlovir? I'm taking one twice a day everyday. My neck is stiff arm still a bit in pain sometimes but definitely better than when I stop taking them.

Yes I’ve been taking that for years.  I’m not sure if it does anything anymore 

Link to post
Share on other sites
Elephant in the room?

Has anyone tried vit a. It seriously gets depleted with viral infections. I know a lot of people get acne co currently with herpes and I suspect it’s vit a. I know you have to be careful of zinc/vit a balanced butnot the exact interactions in detail. Topical and oral vit a could be considered. It can also help topically. Vit A is way over looked next to vit c for assisting treating infections. 

Link to post
Share on other sites
17 hours ago, Just a human being said:

Has anyone tried vit a. It seriously gets depleted with viral infections. I know a lot of people get acne co currently with herpes and I suspect it’s vit a. I know you have to be careful of zinc/vit a balanced butnot the exact interactions in detail. Topical and oral vit a could be considered. It can also help topically. Vit A is way over looked next to vit c for assisting treating infections. 

Both topical of both A and C and oral vitamins from supplement and multi vitamin tried.  I don’t think vitamins are the answer as I’ve tried them all, to no avail.  
 

Thank you for the idea though.  

Link to post
Share on other sites

I though my fordyce spots were HSV, I think its just the normal paranoia people get at first.

Some members of my family got rosacea around the same time, I used to think it was maybe related to me and somehow I had infected them.

However I can't really come up with any evidence, and there seem various theories including mites and bacteria for rosacea. My sister takes some sort of antibiotic tablet to control it I think.

Link to post
Share on other sites
  • 6 months later...

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.



  • Donate

    If Honeycomb has helped you, please help us by making a donation so we can provide you with even better features and services.

  • The Hive is Thriving!

    • Total Topics
      71,737
    • Total Posts
      485,309
  • 0_unsure-if-it-is-herpes.png

    Nervous about dating with herpes? Skip "the talk" and browse profiles here.

  • Posts

    • WilsoInAus
      @CHT my comments regarding your race and socio-economic status are not rude, sounds like they were accurate. I just want you to be aware that there is unconscious bias in your comments based on your perspective. Yes I stand by my comments that the US healthcare system is shameful. If that loses integrity in your eyes, then that is where you sit relative to the healthcare system and my public health philosophies. There is nothing shameful about expressing ones philosophies. Have I been antagonistic in the way I have expressed these things. Yes I have and I apologise for that. I think overall I was pretty shocked that you believed that the majority of infections were asymptomatic for the receiver. Your personal experience was quite the opposite and I admit I was perplexed why you didn't share your personal experience with someone who really wanted to hear a story of a true genital infection.
    • CHT
      "talking up the chances of infection"  What? Wilson, you are now making up dialogue that never occurred.  He asked about testing and when symptoms might manifest.... I answered his questions and then asked why he felt he may be infected?  You need to go back and read over the actual messages.... never once did I "talk up the chance of infection."  You have done a poor job of reading between the lines of my messages back to "Dumbass."  I suggested he may want to meet with a doctor to discuss his situation with the goal of alleviating his concerns about infection particularly since the little bit of information he provided would likely indicate he had a low chance of infection in my opinion.... hearing it from a medical professional, especially with testing, would help confirm this and give him peace of mind.   Wilson, what really surprises me is your last paragraph.  I have read many of your posts on this website over the last couple of years and have always held your opinions in high regard.... always well informed and you never resort to petty insults and bullying even when challenged.  However, your snide speculations about my race and socio-economic status are rude, unnecessary and clearly antagonistic.  Further, your remarks about the healthcare system in the US were clearly hostile, not to mention showing a gross ignorance of how healthcare works here.  Your statements were shameful.... lost integrity.    
    • WilsoInAus
      I'm sorry @CHT you did not give the full information. The chances are not high they will not have recognisable symptoms. And if they do not have recognisable symptoms, then what is the point of going to a doctor for a swab? It is your obligation to tell people their chances and they how arrive at the correct diagnosis through available tests. Are you aware of the psychological harm that you have probably caused by talking up the chance of infection. You didn't say that there would be 50% plus chance that the person did not have HSV-2 in the first place and that the episode was less than a 1 in 1,000 chance. What happened to those odds? What role do they play when you are interpreting symptoms or their absence? In life, you support someone by saying what they NEED to hear and not WHAT you know or want to say. Further, let me guess, white middle class? The bulk of the population cannot afford nor are granted access to health care in your country. Must be nice to be able to afford a clinical evaluation, but let's spare a though for those who can't afford that. All they can do is go with the odds and they are perfectly entitled to do that in their circumstances
    • ZealousidealAide7
      I know that it is not contagious, if that helps 
    • CHT
      "Simply because people think they are asymptomatic doesn't mean they are. When they go to a doctor for education and consciously on the lookout, there is a very high probability if they are infected they will find something." Absolutely true, no argument on the study you reference.  I am also aware of the clinical studies that have demonstrated that those who self-reported as "asymptomatic" when evaluated by medical professionals are made aware that they they aren't actually asymptomatic.  However, going back to the original question at hand as to whether those who are infected demonstrate recognizable symptoms, the answer is still (as per CDC, WHO, and other reliable sources):"Most individuals infected with HSV are asymptomatic or have very mild symptoms that go unnoticed or are mistaken for another skin condition"   So, when someone comes to this site seeking advice and help when they suspect they are newly infected, we have an obligation to point out, as I did in this situation, that the chances are high that they may not have symptoms, or recognize any symptoms,  so, waiting to observe the classic symptoms (that they will no doubt look up online and find all sorts of photos showing "this is what a herpes outbreak looks like") will likely not detect those symptoms.... but, it does not mean they do not have the virus.  Obviously, most infected individuals won't have the benefit of weeks of clinical observation/testing to help them identify easily misidentified (or asymptomatic) symptoms..... these infected individuals will then move along thinking "I dodged the herpes bullet" and quite easily and unknowingly pass the virus on to others.  This occurs frequently when a person who does test positive confronts the person they believe gave them the "gift" and this gift-giver" vehemently denies having the virus since they have never had symptoms of herpes..... (which, again, is very likely as the CDC and WHO clearly point out).  Again, in the unlikely event this person were to enter into a clinical evaluation (as you referenced above), including testing/swabbing, they may find out otherwise.  This fact is one of the main reasons the virus continues to get passed along to others and the percentages of people becoming infected (particularly younger aged population) continues to increase. 
×
×
  • Create New...

Important Information

We have placed cookies on your device to help make this website better. You can adjust your cookie settings, otherwise we'll assume you're okay to continue.