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theuniversesucks

Hi , my two cents , i frequented this forum often as i had extremely strong sensations in my groin area , i had hsv2 diagnosed many years ago and had typical outbreaks decreasing over time but after a risky encounter i believed i had maybe recieved another strain of hsv2 because i started to feel these new strange constant tingling sensations . It dominated my life under the surface for a good few years .

Everything changed in nov 2019 , I went to my second Infectious diseases doctor who sat me down for 15 mins and explained that yes i was feeling these sensations that yes they were real and that yes my nerves in this area were firing like crazy and that she would perscribe amitryptline 75 mg daily for me , what she did tell me was that this was not caused by hsv2 and because her delivery was so convincing and genuine i actually started to buy into it   , she never came out and said what caused this but i could read between the lines and i came to a conclusion that anxiety probably would be the best word . Almost immediately after the apointment my symptoms started to receed before i started to even take the meds  , i have taken the medication regularly and my symptoms have pretty much dissappeared  95%.

My two cents on this is please dont live alone with this if you have nerve issues tingling but with no visible lesions  , please go and talk to professionals , doctors counsellors specialists , take action and more action and start to make the connection between your mind and these sensations , the mind body connection is unbelieveably powerful  , the sensations were 110% genuine which is why i could not divorce them from the herpes until i had this experience .

I am no expert and this is only my experience but i hope this helps somebody , i suffered immensely believeing the herpes was causing my sensations .

Peace and love 

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  • 1 month later...
Sunshinewillcome

I have the exact same symptoms. I was diagnosed on feb via swan after 10 years of going to many doctors and getting swabs explantions etc. My family doctor still believes all my symptoms are not related to Hsv. The community of doctors don’t know much about the other symptoms this monster of virus can do for many people suffering. I to relate with all the tingling painful all over body. And question am I shedding the virus. I have 2 children and scars to death from passing this to. I just want to feel normal for once and not focus on my pain. It had definitely taken a toll on my mental health. It changed me completely . I hope we can relief soon. I’m on antivirals and are doing anything. Don’t know hat dosage to take anymore. 

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  • 5 weeks later...

So happy for you.  
 

I went to the dermatologist today because I feel that it has gone to my face.  Yeah, diagnosed me with rosacea and said no herpes in face.  That’s nice.  
 

ive been taking valtrex for approx 15 years.  No decrease in tingling, nerve pain a lot and groin skin folds that are occasionally shiny and sometimes moist with pain depending on whether I’m wearing underwear or sheet covering.  
 

over the years I have gone to primary care doctor, three derms and one infectious disease.  
 

I have absolutely no relief and no one has a clue.  
 

My face has white pus filled like zits occasionally.  My pores on face on turning dark in places from infection, unless I use an exfoliator, which I’m scared to as it seems to be spreading.  
 

does anyone have any suggestions otherwise.  
 

I have a high stress job and am prone to anxiety despite Wellbutrin and occasional Xanax.  
 

thanks! 

Also tingling across entire face a lot of times 

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Forgot to also mention.  Lesions that improve but never go away, stay white in color, under skin, with pus underneath but no zit looking raise of skin.  
 

also have white spots on facial lips that derm said are fordyce spots.  I think he is wrong.  
 

none of these symptoms goes away.  Once in a while have an actual normally described typical herpes raise inflammation on a red base on buttocks near rectum, but otherwise no other traditional marks.  
 

 

 

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I have been diagnosed hsv2 more than a year ago. Still feel nerve pains all over randomly. Taking valaciclovir makes better but not completely. It's definitely nerve pain. Have you guys all tried valacixlovir? I'm taking one twice a day everyday. My neck is stiff arm still a bit in pain sometimes but definitely better than when I stop taking them.

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On 6/1/2020 at 2:13 PM, Pookie15 said:

also have white spots on facial lips that derm said are fordyce spots.  I think he is wrong.  

You are definitely not the first person on this forum to bring up white spots showing up on your lips after getting a herpes infection. 

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17 hours ago, WSX said:

You are definitely not the first person on this forum to bring up white spots showing up on your lips after getting a herpes infection. 

Maybe, but has anyone had them to where they never went away?  

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  • 2 weeks later...
On 6/6/2020 at 4:02 AM, Misterx said:

I have been diagnosed hsv2 more than a year ago. Still feel nerve pains all over randomly. Taking valaciclovir makes better but not completely. It's definitely nerve pain. Have you guys all tried valacixlovir? I'm taking one twice a day everyday. My neck is stiff arm still a bit in pain sometimes but definitely better than when I stop taking them.

Yes I’ve been taking that for years.  I’m not sure if it does anything anymore 

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Elephant in the room?

Has anyone tried vit a. It seriously gets depleted with viral infections. I know a lot of people get acne co currently with herpes and I suspect it’s vit a. I know you have to be careful of zinc/vit a balanced butnot the exact interactions in detail. Topical and oral vit a could be considered. It can also help topically. Vit A is way over looked next to vit c for assisting treating infections. 

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17 hours ago, Just a human being said:

Has anyone tried vit a. It seriously gets depleted with viral infections. I know a lot of people get acne co currently with herpes and I suspect it’s vit a. I know you have to be careful of zinc/vit a balanced butnot the exact interactions in detail. Topical and oral vit a could be considered. It can also help topically. Vit A is way over looked next to vit c for assisting treating infections. 

Both topical of both A and C and oral vitamins from supplement and multi vitamin tried.  I don’t think vitamins are the answer as I’ve tried them all, to no avail.  
 

Thank you for the idea though.  

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I though my fordyce spots were HSV, I think its just the normal paranoia people get at first.

Some members of my family got rosacea around the same time, I used to think it was maybe related to me and somehow I had infected them.

However I can't really come up with any evidence, and there seem various theories including mites and bacteria for rosacea. My sister takes some sort of antibiotic tablet to control it I think.

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    • Lucy29
      @CHT I am not sure what country you are in but I am in the U.K. and they don’t do blood tests for HSV at the standard sexual health clinics maybe at private ones where you have pay they do.   What would checking my anti bodies confirm ? And she didn’t swab the area as she said there was nothing to swab and no lesions but I am sure there was. She seemed quite inexperienced.  I have had an lesion swabbed years  ago  to confirm HSV2 but no swabs  since.  I would like  to know if they are HSV or my excema as I never know which is which so I just don’t have sex when I get these feelings as I don’t know if I’m having a Outbreak.  I will have a look at the link thanks. I wouldn’t want to go on the implant again as I don’t want 3 years of birth  control in my arm. I may consider the mini pill which is the same hormone as the implant as I can easily stop this it I have a bad reaction. I have an appointment with a specialist at the sexual health clinic next week 
    • WilsoInAus
      Hey @PlainJane what a thoroughly nasty piece of work! Im afraid it is the waiting game for you, having said that, there seems very little reason for you to suspect herpes.
    • PlainJane
      @WilsoInAus Thank you so much for the reply! You did before I even asked lol. I really didn’t want to talk to her about it. The last time we had spoken she was really mean and nasty to me. Threatening to beat me up because she was drunk. I don’t want her going around telling people I asked her if she has herpes because I have it. Which she absolutely will. Or she does and then I will be her scape goat for her to tell people I’m the one who gave it to her. I guess it’ll be a waiting game to get blood work to confirm or deny the presence of HSV2 antibodies. 
    • WilsoInAus
      Hello @PlainJane I think I recall your partner's post and would suggest that what he had as revealed in the photos was almost certainly not herpes - and reaffirmed above! The first thing to note is that you cannot be infected with HSV-1 and then test at a level 43.5 a total of 9 days after the incident. That's not how your body works. It would takes several weeks and possibly months to reach that level. Undoubtedly the HSV-1 infection is old and highly likely an oral infection from your childhood. The next thing to note is that toys or any object are not a great way of transferring herpes. Typically the rubbing of the skin area that is shedding the virus against the recipient's skin is needed. Transfer any other way is somewhere between infeasible to impossible. Your pictures do not look like herpes to me in favour of folliculitis - your partner's thigh shots are almost certainly folliculitis. Also note that this female friend must have HSV-2 for this to even warrant the vaguest notion of herpes being a cause. Can you ask her? If she does have HSV-2, then you will need a 12-16 week IgG test in order to have a conclusive answer (with a strong expectation of negative).
    • PlainJane
      @WilsoInAus Could you review this? You replied previously on my boyfriends post of his butt rash. I guess all I can really do is find a facility who will swab when I have a suspecting bump, since my doctor won’t for some reason and then redo the blood test for HSV2 since it’s now been 4 weeks since possible exposure. 
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