Hey @whereismyanswer my only comment for now is that are you sure these are cold sores and not another condition such as angular cheilitis? Valtrex is effective against oral cold sores in 95%+ of cases so there's a chance that something else is contributing at least.
Hey @Hjkl33 and welcome to the community.
You are right to dismiss the IgM results, they have no real value in an adult for all the reasons I'm sure you have read about.
Your positive test is a very low positive and hence very likely to be false. This combined with what I suspect has been no outbreaks makes a false positive highly likely.
Another IgG test will help your understanding, just insist this is what you want.
hey there! I get them on both corners of my mouth. the right side feels like it never heals, while the left has outbreaks less frequently.
I was thinking an immunologist might be my next step since my GP is really giving me nothing anymore.
Hey @whereismyanswer a good place to start might be if you can tell us what do these outbreaks consist of, where are they? Always on you lips?
It may be that an immunologist might also be a good idea, but a good dermatologist is usually brilliant.
Hello there. I'm a 24F, who has had HSV 1 for 3 and a half years now. I got my first cold sore December of 2016 out of no where when I was 21. I was in school and working at a job that had me very stressed at all time. I came home one day and saw the bumps. Initially, I'd never thought anything of it as my dad always had them when I was growing up. Of course, you go on Google and after about 20 minutes of searching, you are absolutely devastated and disgusted with yourself.
The first year after my 1st outbreak, I'd occasionally experience some shedding, but didn't get another breakout until the following year. Since that outbreak, I've pretty much steadily had cold sores every month for the last 2 and a half years. I was told birth control would help, because I was noticing outbreaks begin about a week before my cycle. Didn't change anything though.
Earlier this year, I finally decided it was time to start suppressive therapy, given the fact that I had no success with natural remedies or hormone leveling using the birth control. I've seen no changes in the frequency of my cold sores since starting 1GM of Valcyclovior. It's been about 3 months, and I met with my doctor today to discuss the issue. She basically told me there was nothing she could do and to see a dermatologist. She also gave me the list of vitamins I already to take to try to include with my daily antiviral. I feel completely defeated. I don't know what to do now or if there is any hope. It hurts me so much because I'm so young and nothing has gotten better. Also, I don't think a dermatologist is the answer. Has anyone else experienced this?