Jump to content

Anyone tried Immunoglbulin (IVIG) therapy?


Recommended Posts

I've had HSV2 for 4 years now. Recently had an unrelated minor spinal injury that caused some severe neuropathy. So instead of taking narcotics for months, my doctor just had me try my first round of Immunoglobulin IVIG treatments (4 days getting the intravenous blood infusion) labeling my symptoms as something called CIPD (google it). (IVIG treatments give you a boost to your immune system).  Also note, I can't take steroids long term also because it spikes my sugar and I have Type 2 diabetes. 

I wonder if anyone else here has tried IVIG? I have read that some people have taken it to suppress HSV. Love to hear from others. It's too early for me to know if this works - I'll report back in several months. Just so you know my background - I had OBs in the first year about every 8 weeks, which consisted of neuropathy and maybe some small bumps. Then the second year I only got those same symptoms every 4 months or so, then i only get these now about once or twice a year, and it's mostly just some tingling and nerve pain. So we'll see how this works out. There are articles out there too. 

@WilsoInAus

Edited to add this link... 

https://pubmed.ncbi.nlm.nih.gov/7759773/#:~:text=Since intravenous immunoglobulins (IVIG) proved,%2FKg every fourth week).

Edited by RSL888
Link to post
Share on other sites
  • 10 months later...

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

  • Single ➵ You may like to try the Dating App

  • Similar Content

    • CookieSC
      By CookieSC
      I am GHSV2 positive with a full credential--an unequivocal and indisputable blood test with lots of little antibodies in it.  I even obtained an advanced degree--a biopsy of the first OB. I've had this nervous system infection for several years...yes, nervous system infection...not a dermatologic infection. It is a widely known fact that GHSV2 resides in the sacral ganglia.  Pesky things, them facts!!! 

      My first OB presented with all the bells and whistles...and sirens.  Now, I rarely get OBs.  By rarely, I mean that I can go a couple of years or more without one.  However, I do frequently suffer from the same identical sacral nerve pain that I experienced when I had my first OB.  I did not experience this type of pain prior to being exposed to HSV2.   There are two reasons I use Valacyclovir, but I do not take it every day.  1. I want to decrease the likelihood of giving HSV2 to my significant other (I don't medicate daily because it was a LDR) and/or 2. I am in a lot of sacral nerve pain and I don't want to wait it out.  In my case, whether or not I use Valacyclovir, I rarely have an OB...I just have nerve pain.  The nerve pain is alleviated by taking Valacyclovir.  It's like prodrome nerve pain, but without the blisters.  Does anyone doubt what I am experiencing as being HSV2 related?  If so, please explain why.  Make sure you have done significant research and are able to post charts and graphs and multiple sources to back up your statements...because this shit's real 😤 
    • Morty123
      By Morty123
      Hey guys for those who struggle with daily nerves pain with doctor saying its not related to Herpes, please have a look on "Elsberg Syndrom" on Google.
      It describes exactly what we have, there are few study of it.
      It's important that doctors are aware of it, changing the vision they have of herpes, which is not just a "skin condition" for some of us
       
    • Quest
    • McDuck
      By McDuck
      Hi. Will try to keep it short:
      Day 0 - Exposure with HSV2 confirmed female. Exposure = 1-time brief unprotected vaginal. Not sure if she had outbreak/shedding/blisters at that time. She was not on any meds.
      Day 5 - Redness and itchiness on the penis head and shaft on and off. Resolved in about a week. No lesions/blisters or other symptoms.
      Day 28 - Other symptoms started: tingling and nerve pains in the groin on and off throughout the day, radiating pains in the legs, fordyce spots appeared on the shaft, lower back and neck pain, burning in urethra (occasional), rashes on the body (occasional), diahrrea (occasional), overall nervousness and tiredness, flue like with feverish (occasional). No lesions/blisters.
      Day 30 - Tested HSV1 positive (IGG 19.6) (had it since childhood), HSV2 negative (IGG 0.3). All other STDs negative.
      Taken antibiotics for 5 days. Taken AV (acyclovir) for 10 days (Days 35-45). No symptoms at that time.
      Day 50 - Tested HSV1 positive (IGG 16.4), HSV2 negative (IGG 0.1). I believe AB went down a bit due to AV. All other STDs negative.
      Currenty symptoms persist on and off, but less severe: tingling and nerve pains in the groin, radiating pains in the legs. Still no lesions/blisters.
      Planning to retest again at Day 90. I am aware that prior HSV1 and AVs may delay HSV2 ABs production.
      What are your thoughts/advice? Thank you.
       
       
       
       
    • Peacepleez
      By Peacepleez
      I wanted to know (unscientifically) how many of us suffer from neuropathy.  It seems like only 1-2% of HSV patients have this by some sources.  Can you chime in if you do suffer from neuropathy and how long.  Unfortunately, no ability to create a "poll" on this website so it'll require responses.  Maybe we can tally in the end.  The hope of course is that something like the Theravax will help alleviate symptoms.  Thanks!
  • Trending Now



  • Donate

    If Honeycomb has helped you, please help us by making a donation so we can provide you with even better features and services.

  • The Hive is Thriving!

    • Total Topics
      71,771
    • Total Posts
      485,469
  • 0_unsure-if-it-is-herpes.png

    Nervous about dating with herpes? Skip "the talk" and browse profiles here.

  • Posts

    • Lucy29
      @CHT I am not sure what country you are in but I am in the U.K. and they don’t do blood tests for HSV at the standard sexual health clinics maybe at private ones where you have pay they do.   What would checking my anti bodies confirm ? And she didn’t swab the area as she said there was nothing to swab and no lesions but I am sure there was. She seemed quite inexperienced.  I have had an lesion swabbed years  ago  to confirm HSV2 but no swabs  since.  I would like  to know if they are HSV or my excema as I never know which is which so I just don’t have sex when I get these feelings as I don’t know if I’m having a Outbreak.  I will have a look at the link thanks. I wouldn’t want to go on the implant again as I don’t want 3 years of birth  control in my arm. I may consider the mini pill which is the same hormone as the implant as I can easily stop this it I have a bad reaction. I have an appointment with a specialist at the sexual health clinic next week 
    • WilsoInAus
      Hey @PlainJane what a thoroughly nasty piece of work! Im afraid it is the waiting game for you, having said that, there seems very little reason for you to suspect herpes.
    • PlainJane
      @WilsoInAus Thank you so much for the reply! You did before I even asked lol. I really didn’t want to talk to her about it. The last time we had spoken she was really mean and nasty to me. Threatening to beat me up because she was drunk. I don’t want her going around telling people I asked her if she has herpes because I have it. Which she absolutely will. Or she does and then I will be her scape goat for her to tell people I’m the one who gave it to her. I guess it’ll be a waiting game to get blood work to confirm or deny the presence of HSV2 antibodies. 
    • WilsoInAus
      Hello @PlainJane I think I recall your partner's post and would suggest that what he had as revealed in the photos was almost certainly not herpes - and reaffirmed above! The first thing to note is that you cannot be infected with HSV-1 and then test at a level 43.5 a total of 9 days after the incident. That's not how your body works. It would takes several weeks and possibly months to reach that level. Undoubtedly the HSV-1 infection is old and highly likely an oral infection from your childhood. The next thing to note is that toys or any object are not a great way of transferring herpes. Typically the rubbing of the skin area that is shedding the virus against the recipient's skin is needed. Transfer any other way is somewhere between infeasible to impossible. Your pictures do not look like herpes to me in favour of folliculitis - your partner's thigh shots are almost certainly folliculitis. Also note that this female friend must have HSV-2 for this to even warrant the vaguest notion of herpes being a cause. Can you ask her? If she does have HSV-2, then you will need a 12-16 week IgG test in order to have a conclusive answer (with a strong expectation of negative).
    • PlainJane
      @WilsoInAus Could you review this? You replied previously on my boyfriends post of his butt rash. I guess all I can really do is find a facility who will swab when I have a suspecting bump, since my doctor won’t for some reason and then redo the blood test for HSV2 since it’s now been 4 weeks since possible exposure. 
×
×
  • Create New...

Important Information

We have placed cookies on your device to help make this website better. You can adjust your cookie settings, otherwise we'll assume you're okay to continue.