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Hi. Sorry for the very long post.
I'm still waiting for swab results for which strain of HSV, but fairly sure after hours of reading on here that it's most likely type 2.
I got tonsillitis 2 days after first contact of who I believe passed the virus on to me. Followed by 3 lots of thrush in 7 weeks. Within 48 hours of the last sexual activity with this man I developed what I thought was just the third case of thrush. Having suffered with reoccurring thrush and BV since a teen (now 30) I knew I'd need a high vaginal swab to confirm nothing else was going on.
I also suffer with endo so I have lot of experience with speculums, but this felt off. On removal of the speculum after swab I thought I was going to pass out from the pain. The nurse just hurried me out really. When I got home I noticed what looked like a small cut at the base of the vaginal opening. from then on the burning and tingling started to be come more noticeable than usual thrush pain. Canesten wasn't cutting it and I'm fairly sure irritated me more as well as the pessary I was advised to use that night.
Day 5 and its uncomfortable to walk. By night I had a slight feeling over fever chills but didn't think much of it and went to bed
Day 6 was like I had flu on top of not being able to walk without pain. I noticed 2 or 3 small dark dots on the inner lips too. I spoke to a pharmacist as i was away for the weekend and she told me it sounded as though it was herpes.
She sold me Emla cream to get me through to being able to go home and see my doctor.
That night my temp was around 39.
Day 7 I was in a lot of pain and exhausted. When I got home mid afternoon and phoned 111. When the nurse called me back later he told me i was welcome to go down for him to have a look but he didn't want to step on anyones toes professionally (bc I was under my GP for thrush) I could tell by his face it was bad, I knew it was bad from the pain, either way he prescribed me with coldsore cream and told me to call sexual health in the morning. At this point I had a handful of blisters that were mainly red with a small whitehead. Struggling with peeing altogether. Discharge is very heavy and strong smelling
Day 8 - sexual health can't even talk to me until Friday (day 12). Called GP and went in for an excruciating swab. So far I've had no one ask me if I had any questions. No real advice other than to not have sex until we had results and to take AV for 5 days see how you go. At this point I had around a dozen blisters some just developing others were quite large and very white with a red outline. Heavy discharge with blood.
Day 9 - every day I thought ok tomorrow I'll feel better. I have to. I couldn't possibly feel worse. WRONG. By far the worst day and night. My 4th night of a high temp which hit 40. Pain in my bum and shooting pains in my legs.
Day 10 - called gp again as the pain was unbearable. Prescribed with Zapain. High vaginal swab came back abnormal for candida told to purchase fluconazol over the counter. Not sure which tablet did it but I had to call my mum to come over as I could barely keep my head up I was so out of it. Taken codeine many times for one reason or another and never had a reaction. Although very little appetite at this point so not much in my stomach. It took the edge off the pain... even if I couldn't see properly!
Day 11 - blisters start bursting now. Not able to pee properly, when I do it doesn't hurt as I'm drinking so much water. Pain in bum legs and feet is constant.
Day 12 - still very sore. Discharge heavy and bleeding from sores. One in particular keeps reblistering. Spoke to sexual health who again hurried me off the phone and prescribed me with another 5 days of AV. When I collected them I begged someone to talk to me. She advised salt baths and would call In a few days.
Day 13 and 14 blisters seem to have healed but still have hypersensitivity as well as tingling and burning. Nerve pain still constant. Sexual health seemed unsure on what to advise about this. Told me it was unlikely to be related and to talk to GP.
Day 16 I spoke to SH again. Another 5 day course prescribed.
This pain has continued. I'm now on Day 19. Waiting for SH to call me back again as I've been awake since 1am with nerve pain and all over body itching. Nothing I do is touching it. I've gone from sleeping for 11 hours a night to 2 hours of broken sleep.
I dont know what else to do. I've processed what I'm certain will be diagnosed when I get my results. I understand its a common virus but I also understand that my symptoms seem to be quite extreme and not so common.
Please just any advice at all. Anything.
I’ve been diagnosed with hsv1 and have had some cold sores on the inside of my lips.
I’ve been diagnosed for some time with that. But around July 2020 I went in for an std panel and to my surprise my hsv2 IGG levels were equivocal.
My doctor at the time told me that I indefinitely had hsv2 although I’ve never had any symptoms.
This began a whole craze. I switched doctors and ordered another hsv2 test that also came back equivocal and was told that what the first doctor said was correct, that I do in fact have hsv2.
The fact that I wasn’t testing positive and none of my past sexual partners tested positive led me to think I should keep getting tested to confirm whether I do or don’t have it.
So I went for the third test and it was .72 IGG which would be a negative. (Around July 2020 as well)
I was still a little confused so I went for another a couple months later in October 2020, this hsv2 test was .89 IGG which is right under equivocal but still negative.
So armed with this data I went to a private doctor that I paid out of pocket for because I began to think that the Medicaid doctors might be wrong and maybe underpaid or whatever I dunno it just didn’t make sense. So I went to the private doctor and at the time I had what seemed to be like a small ingrown hair and I showed them and showed them my data. They said based off the ingrown hair that it was just an ingrown hair, and that the lab results were correct and that I had no hsv2 and that the prior doctors were wrong. The doctor said I should’ve never been tested because I never had any symptoms prior to that small ingrown hair.
So this made me happy but also made me lose faith in our healthcare system.
But just recently I went back for my 10 panel and on 6/9/2021 my hsv2 results were 1.11 IGG which indicates I am positive. This is driving me crazy and on a side note I noticed that my hsv1 IGG levels were both gradually going up as the hsv2 was creeping up. I dunno if there’s any correlation there but it’s just something I went back to look at out of curiosity because I do know I’m hsv1 positive.
At this point I just want to know if I am in fact hsv2 positive, what should I do? I want to get the western blot test because it’s supposedly the golden standard.
here are copies of my tests
Looking for a little advice, thanks in advance to anyone who can provide any. Sorry long post but it's an unusual case.....
Although a new member here I am, unfortunately, a veteran HSV2 sufferer, contracted over 30 years ago. Male, 55yo, hetero, married.
It has always been an irritant, but liveable, or so I thought, as although outbreaks are frequent the lesions are rarely anywhere that cause a big problem.
The virus entered via the genitals, as for most, but after the primary outbreak the lesions are mostly at the base of the spine or behind my ear, occasionally on the chin but almost never on the classic sites of lips or genitals. So it hasn't been a big headache for my sex life over the years, which is a big plus, and I've never passed it to anyone despite having quite a few partners, for which I am very grateful.
However, for the last 2-3 years I've been suffering slowly increasing neurological symptoms, starting with deafness and Menieres-type symptoms in the right ear, and recently pyloric sphincter reflux issues, scary moments when I almost-vomit while falling asleep, and increasingly poor digestion. My intellect and concentration is not what it was, either. Frequent night sweats and low fevers.
After tests for MS and all sorts of other things and noticing that my HSV2 antibodies level is off the scale (I stupidly hadn't informed him about HSV2 as I thought it irrelevant) on an almost permanent basis, my doctor thinks the immune system is causing neurological damage due to being activated permanently against the HSV2 (uselessly I might add) - so similar to MS in a way. He says it's rare, but it happens.
Soon I will have the first appointment with the neurologist to discuss this, but at the moment Covid19 is making getting an appointment difficult.
Obviously I need to change my life to live it in a way that will calm the HSV2, as it's not going anywhere. Reduced sugar, reduced alcohol, reduced high-arginine foods (I love Brazil nuts 😞 ) seems the way to go. Fasting works quite well but difficult when at home (I work away sometimes but not atm due to Covid)
Right - that advice....
I want to start with some dietary supplements to help. Lysine about 3g and Zinc 25mg looks a good place to start. Any other "obvious" ones? What about the dietary change, I like cream as well, does that have to go too? 😞
Any other obvious things I should be considering?
Has anyone heard of this research? I did a quick search here and did not see anything. This article is from 2016, but it sounded promising for broad spectrum lipid coated antiviral potential.
So this is going to be a long one but please stick it out. I’ll be extremely grateful.
So after going to my doctors for a general check up due to me having Molluscum (had during childhood, but reappeared when I was 19) he mentioned having a routine STD check.
I thought nothing of it and accepted. Everything came back negative, syphillis, chlamydia, ghonnerea and HIV.
What I didn’t realise is that herpes wasn’t a routine test and I started looking online about what herpes involved. I was scared and uncertain about my status now beings as the more I read. The more symptoms I believe I’ve had.
starting in 2018 I had developed iritis which apparently can be a result of H. This however was during a stressful period of my life.
Since my first sexual partner my posterior fourchette has always been weak and I have little tears (not serious) ever since. They heal within a day.
However. Whilst itchiness, blisters, soreness is the typical symptoms for when people have it (and I have never had) I have noticed that I have had a very very thin, not deep, none sore (unless touched) cut on my inner labia a few weeks ago.
Then three days ago I had a tiny tiny cut which resembled more of very thin tear I guess it closer to a definition, since the one on my labia was more of a cut ( but I would also say like a scratch) on the upper part of my genitals just where the pubic area ended. It was quite sore when touched but didn’t bother me otherwise. I have had this cut before however typically when my pubic hair is growing back. In around about the same area which goes away within 2-3 days maximum.
Does this seem like genital herpes?
further more, I now have concerns about my mouth too. This is the first time this has ever happened to me. And had occurred two days after I started panicking about this, so I would say I was extremely stressed.
My tongue turned Pale and patchy with red indents on my tongue. Ulcers (eventhough they didn’t hurt) appeared on the back of the sides of my tongue. The sores then travelled all along the sides of my tongue to the tip of my tongue. (A few yellow patches still being on the back of either side of my tongue) Being in one place, then moving to another. I must say that I had smaller sores and then I had food poisoning which resulted in vomiting which then made the sores triple in amount. Also there are light yellow patches/dots on the back of my throat.
I have been using salt water rinses and bonjella on the sores. It’s important to note that the sores don’t hurt or irritate me UNLESS I use the bonjela which causes them to burn a little.
I have never had anything like this in my mouth before and this has lasted two weeks, And I guess I’m just extremely upset because I’ve only had two sexual partners. And have been with my current partner for two years. So for all of this to suddenly occur has created so much stress for me. I’ve already told him that there is a possibility since I wanted to be open from the very beginning, but since the COVID scares, anywhere I could get the cuts on my genital swabbed is closed and it’s already gone now. So I’m hoping I could eat some advice here ..
when seeing my GP about my mouth she said it didnt look like herpes and was quite certain. She said it just looked like ulcers and said it could be down to the immense stress I’ve put myself under due to panicking.
So... Is this thrush/stress/herpes???
Here are the links to the Reddit page I made showing the problems with my mouth as I unfortunately have no pictures of my genital cut.