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    • Voyager2
      Sure hope this pans out. 
    • Voyager2
      Don't forget there are two promising vaccines on the prophylactic front (but only pre-clinical): The Trivalent vaccine worked well on guinea pigs:  https://pubmed.ncbi.nlm.nih.gov/32347775/ The Einstein (Xvax) vaccine also has a ways to go: https://x-vax.com/ The fact HSV529 is in yet another clinical trial is good news for herpsters. 
    • Davrk8
      thank you for the info. I am uncircumcised. I applied some clotrimazole cream during the last outbreak I noticed, which seem to do the trick (around a month ago). But now, there new dots are appearing at a different location on the glans. Wasnt sure if balanitis can come back so soon or if it could be something else. 
    • Josse
      Looks like mild balanitis. If you are uncircumcised then thats normal every now and then due to accumulation of yeast and the irritation of the foreskin
    • MikeHerp
      I think the simple reason is that this is a fund raiser that was started by our community rather than by Fred Hutch.  Or rather, FHC started it in response to our request.   I still think they should somehow feature it in their pages.  But anyway, that's just how they do it. Keep in mind that FHC's main focus is curing cancer.  It's a cancer research institute.  They might feel that putting stuff on their website that isn't directly related to cancer might give people the impression, especially cancer cure donors (who are by far the main donors to FHC), that FHC is losing its focus. So we have to work within these limits.   However, I do draw strength from the fact that FHC has tried to help us with the fund raiser.  Among others: 1.  When the new research paper is released, FHC has gotten an agreement with a prominent sexual health blogger, to promote the research and the fund raiser. 2.  There is another potential promotion in the works that might get back on track if the US is able to get the coronavirus under control. So FHC has actively helped us to promote the fund raiser.
Coby38

Advice, help needed !

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Coby38

Hello,

 A couple years ago I was with a girl (hsv2+) I went to the hospital for a constant stabbing pain in the urethra  the doctors said it was urethritis gave me a shot in the butt and as I left I started to vomit , as days went by I started to feel better. 6 or so months later while I’m playing basketball I feel two bumps constantly rubbing against each other causing irritation the next few days my penis was highly irritated felt raw and it was hard for me to urinate and at one point during urination i seen white discharge coming out fixing  , I went to several doctors and all dismissed the bumps and testing was negative gave me all different types of medicine . Finally I go to a urologist and ask for a herpes test to make sure and I come up equivocal for HSV1 the doctor tells me and immediately hung up sent me to a infectious disease specialist where he dismissed the hsv1 diagnoses as prostatitits so I took the medicine symptoms lingered then I eventually got better months later a small lump in the groin area appeared agin causing irritation I went back to the doctor took the pills but this time it took much longer to get better. A year into seeing the doctor I ask for another hsv test and it can up 1.2 igg for hsv1 and 0.2 for hsv2 he tells me I’m good and to go see another doctor, the last doctor I seen was last October he did a rectal exam then cytoscopy and said everything was fine on the inside and I need to go to pelvic floor therapy because I have pelvic floor dysfunction. I’m honestly not sure do you guys think this is a form of genital herpes problems. 
symptoms during this time- pain on tip of penis, retraction and pain of penis , penis has Clamy like feel, burning and tingling sensation as I pee as if there was bumpers inside my penis , notice I smell totally different now my groin has a weird smell at times ,feel like pee is stuck in the shaft ,clear discharge or left over pee in shaft no each or any noticeable lesions besides lump in groin area next to textiles and thighs , feeling as if I lost size, hard time getting and sustaining erection.Feels better when I sit in pee
Pls help not sure if I go through with therapy or find another doctor for another exam P.S all test were blood test could it be a mixup of types?!

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WilsoInAus

Hey @Coby38 and welcome to the website.

I think the first issue to cover off is when did the urethra symptoms start? Was it during the relationship or some time after the last time you had sex? This will help.

On rare occasions, guys do become infected in the urethra. Usually not of course as the penis itself is the more 'vulnerable' of infections sites with unprotected sex. Where this happens it does resolve in a week or so and rarely returns. Although not a likely explanation, based on what you describe, the probability of infection is low, but something to eliminate given the relationship with a HSV-2+ partner.

Something then emerging six months later is also consistent with herpes behaviour so the concern is still quite rightly present. I think from here though, the symptoms depart from sufficiently to reduce concerns that is then removed by your testing. White discharge is highly indicative of a bacterial issue in the urethra, bladder etc.

Quite rightly, it is appropriate to assume your HSV-1 infection is oral from childhood. Several reasons for this: 1 - the sudden urethra pain would occur soon after initial infection which doesn't seem possible for HSV-1 given your partner is HSV-2+(assuming HSV-1-); 2 - HSV-1 rarely cases problems at all after the first outbreak, it is weak in the genital location; 3 - so many people are infected in childhood, easy to extrapolate you are one of them.

Pelvic floor issues are quite common. In fact the condition 'prostadynia' is very common for males with a third of men experiencing at least one episode in their lifetimes. It is often stress/anxiety related that manifests in dysfunction in the nerves and muscles in the genital region. Your symptoms are highly aligned to prostadynia.

The blood tests are type specific, no mix ups in that sense.

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Coby38
4 hours ago, WilsoInAus said:

Hey @Coby38 and welcome to the website.

I think the first issue to cover off is when did the urethra symptoms start? Was it during the relationship or some time after the last time you had sex? This will help.

On rare occasions, guys do become infected in the urethra. Usually not of course as the penis itself is the more 'vulnerable' of infections sites with unprotected sex. Where this happens it does resolve in a week or so and rarely returns. Although not a likely explanation, based on what you describe, the probability of infection is low, but something to eliminate given the relationship with a HSV-2+ partner.

Something then emerging six months later is also consistent with herpes behaviour so the concern is still quite rightly present. I think from here though, the symptoms depart from sufficiently to reduce concerns that is then removed by your testing. White discharge is highly indicative of a bacterial issue in the urethra, bladder etc.

Quite rightly, it is appropriate to assume your HSV-1 infection is oral from childhood. Several reasons for this: 1 - the sudden urethra pain would occur soon after initial infection which doesn't seem possible for HSV-1 given your partner is HSV-2+(assuming HSV-1-); 2 - HSV-1 rarely cases problems at all after the first outbreak, it is weak in the genital location; 3 - so many people are infected in childhood, easy to extrapolate you are one of them.

Pelvic floor issues are quite common. In fact the condition 'prostadynia' is very common for males with a third of men experiencing at least one episode in their lifetimes. It is often stress/anxiety related that manifests in dysfunction in the nerves and muscles in the genital region. Your symptoms are highly aligned to prostadynia.

The blood tests are type specific, no mix ups in that sense.

@WilsoInAus well it started to happen after our last time having sex maybe 1-2 weeks after I caught her cheating sadly the time I think I contracted it the condom slipped off me I came inside her. as I said above doctors believed it to be just NGU and I eventually got better but pain lingered, I sleep naked because of the irritation feeling. Do you think the doctor that performed cystoscopy would have seen scars inside the penis? he told me he didn’t see anything. Others symptoms are night sweats,less sperm when I ejaculate ,lower stomach pain , nauseas,sometimes I feel a bubbling like feeling toward the tip,cold clammy penis feel,Penis shriveled up in pain (extreme pain) to where I couldn’t pee and it felt like it was trying to retract inside of me. A year later had sex with another partner and it  was difficult I couldn’t get a erection when i did it would go limp in seconds on and off.and my penis felt swole and cold at the tip.

So do you recommend pursuing a different doctor or just go to the therapy ? I’d hate to keep spending money and don’t want to waste it  and also don’t want to pass it because I’m around my family members and they tend to have towels mix ups all the time I’m really trying to move past this but can’t I’m very young 24 and  want to have kids but I fear impotency due to this virus. The past week symptoms have returned but not as bad stomach pain nausea sweats and burning and tingling sensation, I never wake up with morning wood since believed “OB’s” this time around that’s why I’m here I’ve never gotten outside opinions but have been reading through this site for a few days . Thank you for the response as well

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WilsoInAus

Hey @Coby38 I do believe you should continue with the treatment prescribed by the doctor.

Have you looked up prostadynia? Here's some notes on the condition.

What is chronic nonbacterial prostatitis?
Chronic nonbacterial prostatitis, also known as chronic pelvic pain syndrome, is a common condition that affects men. It causes pain and inflammation in the prostate, pelvis, and the lower urinary tract. The prostate gland is located right below the bladder in men. It produces fluid that helps transport sperm. In the United States, chronic nonbacterial prostatitis affects around 10 to 15 percent of men.

What are the symptoms of nonbacterial prostatitis?
Symptoms can cause ongoing pain, discomfort, and urinary issues, such as:

  • difficulty urinating or straining to urinate
  • frequent or urgent need to urinate
  • blood in semen
  • pain or burning with urination
  • pain with bowel movement
  • pain with ejaculation
  • pain in the low back and pelvis, above the pubic bone, between the genitals and anus, on the tip of the penis, or in the urethra
  • sexual dysfunction
  • genital pain after urination

Just an example of the myriad of complications that many men get - it includes men with and without herpes. So please follow your doctor's advice.

What I suspect is that the stress of the breakup from a person with genital herpes is playing a big role here.

I take it this partner was also quite young... why did she feel she had genital HSV-2? Could it have been genital HSV-1 for example?

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Coby38
14 minutes ago, WilsoInAus said:

Hey @Coby38 I do believe you should continue with the treatment prescribed by the doctor.

Have you looked up prostadynia? Here's some notes on the condition.

What is chronic nonbacterial prostatitis?
Chronic nonbacterial prostatitis, also known as chronic pelvic pain syndrome, is a common condition that affects men. It causes pain and inflammation in the prostate, pelvis, and the lower urinary tract. The prostate gland is located right below the bladder in men. It produces fluid that helps transport sperm. In the United States, chronic nonbacterial prostatitis affects around 10 to 15 percent of men.

What are the symptoms of nonbacterial prostatitis?
Symptoms can cause ongoing pain, discomfort, and urinary issues, such as:

  • difficulty urinating or straining to urinate
  • frequent or urgent need to urinate
  • blood in semen
  • pain or burning with urination
  • pain with bowel movement
  • pain with ejaculation
  • pain in the low back and pelvis, above the pubic bone, between the genitals and anus, on the tip of the penis, or in the urethra
  • sexual dysfunction
  • genital pain after urination

Just an example of the myriad of complications that many men get - it includes men with and without herpes. So please follow your doctor's advice.

What I suspect is that the stress of the breakup from a person with genital herpes is playing a big role here.

I take it this partner was also quite young... why did she feel she had genital HSV-2? Could it have been genital HSV-1 for example?

@WilsoInAus Yea like a year or so prior she experienced some extremely  painful bumps in her area went to the doctor and was diagnosed with HSV2 we were both the same age were in college at the time I continued the relationship because it could’ve happened to anybody and I’m extremely too nice, Spoke to her a year ago and she was also confused by my positive hsv index . ... Yes I looked it up will ask the urologist about it that I see on Monday hopefully I can overcome this been too long feeling like my body is self destructing from the inside out mentally and physically I don’t feel the same . Thank you for the advice I’ll keep this thread updated to let you guys know what I find out . Also if I have hsv would it be easily transmissible since area is inside penis ? Never had cold sores in my mouth that’s why the HSV1 diagnoses is weird to me .

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WilsoInAus

@Coby38 are you suggesting that you were with this girl when she was first diagnosed with genital herpes? Did she get a swab of those symptoms?

Note that about 40% of people with a childhood HSV-1 infection have no living memory of cold sores.

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Coby38
11 minutes ago, WilsoInAus said:

@Coby38 are you suggesting that you were with this girl when she was first diagnosed with genital herpes? Did she get a swab of those symptoms?

Note that about 40% of people with a childhood HSV-1 infection have no living memory of cold sores.

Yes I was , she believed she got it from her previous relationship and yes she received a swab her doctor claimed that he doubt she was transmitting it to me due to her having bumps/lesions a week prior of the end of the summer ... Story during the winter she had a abortion from previous relationship found out she had herpes toward the end of the summer when bumps appeared doctor felt she didn’t experience first OB because of abortion 

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WilsoInAus

Hey @Coby38 there is a more plausible explanation. There is a chance here that you gave this girl genital herpes from your oral HSV-1 infection. This would mean that there was no HSV-2 present and you would not be at feasible risk of genital HSV-1 owing to your immunity. 

It isn't feasible that an abortion would delay a primary outbreak of a recent herpes infection.

None of this changes your status which is negative for HSV-2. Just all casts more doubt on whether there was even a real possibility of a genital HSV-2 infection in the first place.

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Coby38
8 minutes ago, WilsoInAus said:

Hey @Coby38 there is a more plausible explanation. There is a chance here that you gave this girl genital herpes from your oral HSV-1 infection. This would mean that there was no HSV-2 present and you would not be at feasible risk of genital HSV-1 owing to your immunity. 

It isn't feasible that an abortion would delay a primary outbreak of a recent herpes infection.

None of this changes your status which is negative for HSV-2. Just all casts more doubt on whether there was even a real possibility of a genital HSV-2 infection in the first place.

See that’s the thing she verified that her ex had hsv2  and she was positive for hsv2 we didn’t start having sex until around March she had the abortion in January hence I wasn’t having sex with her at that time or anytime prior. March until I came back in August and she told me this during the summer we had sex occasionally due to being in different cities.  We stayed together past that and the following year I visited the Er around April then so on with the story from earlier. I’ve had 2 positive  HSV 1 test one equivocal the other 1.2 igg. Hopefully it’s due to some childhood cause but in my head I still believe there is still a possibility and it’s hard for me to shake. Since my penis has visible looked different no bumps or lesions or anything but one spot of my shaft the penis looks different but the doctor dismissed it and on my penis head the skin looks different in a certain spot but the doctor waved it off so idk they say it’s unlikely that ... but that’s still leaves a possibility ,my life has felt terrible since although I’ve accomplished everything I set out to do I still feel drained and quality of life substantially diminished haven’t really had sex in yours because I don’t know and they don’t know so why risk passing I don’t want that for anybody Thank you will keep updated 

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WilsoInAus

Good luck @Coby38, remember to focus on what is truly going on for you to return to being the best form of yourself.

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