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I was diagnosed with ghsv-1 about 6 years ago and id like to share my exprience with you in the hopes that you may see the light at the end of the tunnel.
When i was given my diagnosis i had only recently moved to a new town, come out to my family and stsrted dating. I was basically at the happiest point in my life and boy did that take a quick turn.
I had every awful symptom under the sun the worst being intense nerve pain in my thighs and constant pins and needles in my hands and feet for almost 2 years. I was convinced my dating life was over and for the first time in my life developed severe anxiety. I was convinced i had some other life threatening disease that the doctors hadnt picked up went through a plethora of blood test, scans and dr appointnents. Even my Gp admitted my immune system was having a severe reaction to the virus. I had swollen lymph nodes in my chest, armpits and groin and had to sleep with an ice pack many nights.
However, my turning point was when i decided i needed to get back out there and start dating again. I was having few outbreaks and regularly taking antivirals it was mainly the pain stopping me. My dr eventually prescribed me pregabalin which stopped most of my pain and i started to feel like myself again.
I started dating... and i dreaded that conversation...telling someone else what i had. But obviously being the right thing to do i always told my partner before any physical activity. Over the following two years i dated about 5 people. Not one had a negative reaction to my honesty. Infact it was often the opposite.. and all of those relationships ended for reasons other than me having this virus.
I have now been in a relationship for almost 2 years with an amazing person and barely ever have those symptoms anymore. I keep valacyclovir and pregabalin handy just incase but its so rare i need them that i probably fill one prescription a year.
I used this forum daily for those first couple of years and never saw enough accounts from people once they got through that tough patch. I promised myself thst if i felt better one day id post ky experience. I know everybodys experience is different with the virus but i hope that this helps at least a couple of people see that you can and will one day feel ok, adjust to living with the virus and eventually feel normal again.
Would love any advice on if these symptoms seem like hsv or if anyone else has had consistent negative testing yet present with intense symptoms. Doctors I have seen do not think it is hsv. But cannot give me any other explanation.
Had sex in 11/8 and symptoms started 11/15 and have wavered in intensity and changed yet been consistent through out the last 5 months.
Initial symptoms: vaginal itching, thick white discharge, anal itching, two tears in labia. Doctor thought it could be yeast was treated and with no change to my symptoms.
Following symptoms: chills, body aches, smooth bumps that burned slightly on buttock, headaches, nerve pain in hands and feet as well as wrist. Constipation and numbness on clit. Watery/bubbly discharge even though no internal lesions were present. Also had grey discharge for one day.
Next symptoms: burning sensation, tingling, cooling sensation in groin, back thighs, and buttocks. which has continued for the last 4 months with little relief. Also raw and irritated feeling in thighs and labia area. discharge goes from a sticky whiteish consistency to a thick white consistency.
Symptoms on mouth: tingling, burning, splitting, and tears on one side of lip. These seems appear off and on occasionally.
The most intense symptoms of all is the nerve pain. It feels like I cant escape it. And it is the main symptoms that leads me to believe I have hsv.
I have had no noticeable lesions, blisters or coldsores.
Has been negative for yeast, BV, and other stds.
Tears were swab with a viral culture: negative.
IgG test at 2 weeks, 5 weeks, 12 weeks 18 weeks: negative.
I have had the western blot kit sent to me, just worried about finding a doctor that will agree to sign the paperwork. Planning to get the WB to give me answers.
Partner refused to get tested for HSV and claims he is clean which makes me even more suspicious.
I was diagnosed with hsv1&2 earlier this year. I was prescribed 1g of valtrex (valacyclovir) a day for suppressive therapy. Valtrex helps greatly with my symtoms, but I recently had to leave my job for health reasons and will no longer have health insurance to get prescribed valtrex.
Does anyone know where I can purchase valtrex (valacyclovir) online without a prescription?
So about 1 and a half weeks ago I had protected sex (was unsure about the integrity of the condom) and I wasn’t sure what her hsv status was. Over the course of a week I noticed it began to burn when I pee and my groin itched a lot (not sure if this is psychological, not so much anymore).
But now tiny patches of bumps like these have appeared on my penis head (only the head) and I’m not sure what they could be. Anyone have any thoughts?
Thank you in advance!
I am experiencing a lot of nerve pain, numbness, shooting pain, back pain, leg pain, pain in my butt cheeks... and I found some studies on nerve pain & HSV...