Jump to content

Recommended Posts

Since getting this virus I no longer have an appetite you know how when you get hungry you develop hungry pains. I don't get those anymore. Has anyone else experiencing that as well. Please help me to understand what is happening to me.

Link to post
Share on other sites
4 hours ago, Desiree said:

Since getting this virus I no longer have an appetite you know how when you get hungry you develop hungry pains. I don't get those anymore. Has anyone else experiencing that as well. Please help me to understand what is happening to me.

This has nothing to do with herpes. I have replied to another post where we can explore your immune disorders further if you like.

Link to post
Share on other sites
On 11/21/2021 at 4:36 PM, WilsoInAus said:

This has nothing to do with herpes. I have replied to another post where we can explore your immune disorders further if you like.

OK yes I would but I was diagnosed with having hsv2 ...I have read where it causes itching tingling and burning of the skin...but I'm open 

Link to post
Share on other sites
31 minutes ago, Desiree said:

OK yes I would but I was diagnosed with having hsv2 ...I have read where it causes itching tingling and burning of the skin...but I'm open 

But being diagnosed with HSV-2 does not mean that everything that happens to you is related. Also having HSV-2 does not mean you don't develop unrelated ailments/disorders etc.

What you are referring to is prodrome that is very concentrated in a spot where an outbreak follows within hours. Herpes does not cause a general, persistent tingle or burn of the skin otherwise.

Link to post
Share on other sites
9 minutes ago, WilsoInAus said:

But being diagnosed with HSV-2 does not mean that everything that happens to you is related. Also having HSV-2 does not mean you don't develop unrelated ailments/disorders etc.

What you are referring to is prodrome that is very concentrated in a spot where an outbreak follows within hours. Herpes does not cause a general, persistent tingle or burn of the skin otherwise.

Can you do me a favor and go to these websites www.academic.oup.com , www.ncbi.him.nih.gov .www.hindawi.com heroes simplexvirus ulcerative colitis and get back with me...

Link to post
Share on other sites
10 minutes ago, Desiree said:

Can you do me a favor and go to these websites www.academic.oup.com , www.ncbi.him.nih.gov .www.hindawi.com heroes simplexvirus ulcerative colitis and get back with me...

Yes I am quite familiar with that... but that is the point of why I asked the other question... what immunosuppressants are you taking for what immune disorder? Have you had an anal swab, colonoscopy etc.?

Link to post
Share on other sites

Can you do me a favor and go these websites than get back with me, herpes simplex virus complicated ulcerative colitis www.academic.oup.com, www.ncbi.nim.nih.gov, www.hindawi.com

Link to post
Share on other sites
Just now, Desiree said:

Can you do me a favor and go these websites than get back with me, herpes simplex virus complicated ulcerative colitis www.academic.oup.com, www.ncbi.nim.nih.gov, www.hindawi.com

See above.

Link to post
Share on other sites
10 hours ago, WilsoInAus said:

Yes I am quite familiar with that... but that is the point of why I asked the other question... what immunosuppressants are you taking for what immune disorder? Have you had an anal swab, colonoscopy etc.?

I was taking valtrex 2grams a day and I had a colonoscopy showing inflammation and ulcer like sores throughout the colon and mild inflammation in the stomach....when you ask about immunosuppressant what do you mean.Saw a Infectious disease doctor yesterday and she said she has never heard of herpes simplex virus complicated ulcerative colitis and the biopsy of the tisie is showing negative for cmv and the other virusus...but I know it is related .....

Link to post
Share on other sites

Hey @Desiree may I ask why are you taking 2g of Valtrex a day? How did you learn you have HSV-2?

I am not surprised your doctor has not heard of it. There is no convincing evidence that herpes viruses can actually cause the issue. CMV is implicated but it is unknown if this is the cause or whether it is opportunistic in its appearance. What you have read is only a case study and is not fact. It is written to encourage doctors to be on the lookout in case something emerges surrounding HSV-2, but it hasn’t.

Your tissue sample is conclusive, herpes is not the cause of your issue - the odds of it doing so were low in n the first place (CMV is present 5-15% of the time and as I say unknown if it’s a cause, a cofactor or an innocuous passenger).

Hence You need to continue to work with your doctor toward diagnosis and resolution. Please don’t guess at stuff, it really won’t help you recover.

 

Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.



  • Donate

    If Honeycomb has helped you, please help us by making a donation so we can provide you with even better features and services.

  • The Hive is Thriving!

    • Total Topics
      72,001
    • Total Posts
      486,776
  • 0_unsure-if-it-is-herpes.png

    Nervous about dating with herpes? Skip "the talk" and browse profiles here.

  • Posts

    • WilsoInAus
      Hey @Fernie hope you are going well. The doctor is spot on here. Many people with HSV-1 end up with slightly elevated results for HSV-2 that does not indicate infection with HSV-2. This persists from test to test for some people. The Westernblot would be useful to you, but will just confirm what is being said to you. Most people actually with HSV-2 test above 3.5 on those sorts of tests. 
    • Fernie
      Just got off the phone with a doctor and they said based off the history of my tests, it’s most likely a false positive.    they also said that because I have hsv1 that that could be causing the false positive 
    • ChattyB
      How do you know you have hsv-2 orally.  I read that having hsv-2 orally is highly unlikely. 
    • Fernie
      I’m so confused and don’t know what to do.    Sorry for posting here so much but I’m just lost.   I’ve tested normal on these dates 7/14/2020 0.72 IGG , 10/28/2020 0.89 IGG.    Then I tested low positive 6/6/2021 1.11 IGG.    I went back after that test to confirm the abnormal results on 7/29/2021 0.78 IGG were the results which led me to believe that the first abnormal results were just wrong.    Fast forward to now I just got my results back this morning from 11/27/2021 1.17 IGG, were the results. I’m just so confused, don’t know what to do. I’m going to have a consultation over the phone with a physician today and I also reached out to Terri from Westover Heights.    At this point I’m considering a western blot and I’m so paranoid I also signed up for another full panel std testing. I’m just so confused and stressed out.  Hope my buddy @WilsoInAus sees this  
    • ChattyB
      Did you find out what's going on. I'm having the same exact shit
×
×
  • Create New...

Important Information

We have placed cookies on your device to help make this website better. You can adjust your cookie settings, otherwise we'll assume you're okay to continue.