HSV infection and pelvic floor dysfunction

[Borealis]

Is anybody of members diagnosed with PFD due tu genital hsv infection?

I was reading book Heal pelvic pain written by Amy Stein where is stated that certain infections can cause pelvic floor dysfunction and genital HSV infection is one of them. Theory is that activation/reactivation is causing irritation of pelvic nerves and since pelvic floor muscles are innervated with those nerves they too become irritated and not working properly which results with pain and all kind of difficulties.

Symptoms of PFD are similar to pudendal neuralgia. I too have those symptoms which are usually mild but tend to worse from time to time. I know that there was lot of talking about post herpetic neuralgia and I too was convinced PHN is culprit of my pain but now I am thinking that I maybe have PFD. Since I bacame pregnant, my symptoms are now much worse. 😔

The best way to diagnose is to be checked and evaluated by pelvic floor therapist of course. 

If someone is diagnosed with HSV infection and was diagnosed with pelvic floor dysfunction please give your comment. 😊

 

[L123help]

Yea, I had a very similar situation. I had my ob in july and was in such pain I ended up in the er twice and was finally admitted the second time. At first all the pain burning and stabbing was chalked up to a very bad ob my many different doctors. Then through my own research it seemed I had pudendal neuralgia causef from the stress to the muscles in the vaginal region. I was so happy I had a “diagnosis” to be treated. Thousands of dollars later of injections pdn was ruled out and hypertonic pelvic floor was brought up when I found a pelvic floor physical therapist. Her work has made a tremendous improvement. Its been 7 months and still in pt but feel like this is so rarely discussed. I wish i heard more stories similar to this (and by no means would i wish this on anyone ever!!! But just support and not feeling so alone). Currently think Im having an outbreak due to stress which isnt helping matters but the pelvic floor dysfunction diagnosis had really made it possible to find some relief!

[Borealis]

Hey @L123help! 

Thank you very much for sharing your experience! 

So you say that pelvic floor therapy helped you a lot? How often do you have pelvic floor therapy? What pelvic floor muscles are your biggest problems? Do you practice stretching regulary?

 

[L123help]

Yes, unfortunately after my first ob of hsv 1 on the genitals, a hospital stay and many doctors later. I was diagnosed with pudendial neuralgia, hypertonic pelvic floor and post herpetic neuralgia. Ive been on nerve pain meds for 10 months, pelvic floor physical therapy and nerve blocks all in hopes of ending the 24/7 vaginal burning I experience. None has fixed the problem but pt has helped some. Yes, at first pt 2x a week then once a werk then back to 2 when I flare. Now insurance isnt covering it and its very expensive. Ive been doing pt for about 6 months. Have you found anything thats helped you?