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freeheart

Hello and thank you for all the usefull info.

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freeheart

I was diagnosed 5 weeks ago. I have very very mild symptoms and didn't know that I had it, but realize now after some awareness that I was given this nice present by my ex husband 6-7 yrs ago. Thank God I haven't given it to anyone else (I checked with them after being diagnosed). I have learned alot here reading a lot of the threads and I have tried some of the treatments mentioned here. But I have a question for anyone out there.....has anyone experienced leg cramps at night after starting taking the L-lysene? I would wake up with a cramp in the muscel running down the side of my calf at about 4:30 every night starting the 2nd night after taking it. I was taking 100 mg. I stopped taking it after two weeks and the leg cramps stopped the 2nd night after stopping. Just curious if anyone else has experienced that.

Also, I have read good things about the Oil of Oregano and am going to try it. Has anyone had any thing other than good happen while taking that?

I am so glad that I found this site. I have chosen not to tell my family because of ignorance of the virus would cause me more drama than I can deal with right now. So, I have felt pretty alone since my life change. I have a good attitude about all of it (after a very scary emotional roller coaster ride) and I am confindent that I can live with this. I'm very thankfull that I have mild symptoms and my heart goes out to all of those that have it worse than I. Thank y'all for being here for me.

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coalminer

Oil of Oregano

I have tried just about everything. In addition to almost eliminating all coffee, popcorn , nuts, chocolate (I still eat these things infrequently and in small proportions) and having a good, very low fat diet, I also exercise often (walks with a friend, light weights, bicycling, etc.). I used to get outbreaks almost monthly. Then I tried Dynamiclear on fresh sores with great success. After the Dynamiclear dried I would start with Purell with Aloe which you can carry with you and apply it many times throughout the day (it can be safely used on your face). Then I read about Oil of Oregano on this site. I did some research and found what I think is the best source in strength and best price (http://www.bio-alternatives.net). This stuff is fantastic. I am on the 30 day plan suggested by another person on this site who thinks her case is cured. What I do is apply it daily from the end of my tailbone them up my spine up to my waist. I also apply it behind my neck from the base of my skull to the shoulder blades. And I put 5 or 6 drops under my tongue at least 2 times a day, morning and night. This has definitely eliminated outbreaks. I'll continue to do this for at least one month, maybe 2 or 3 months. Because of the odor, I use Purell during the day when I'm out and about.

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freeheart

Thank you for sharing your experiences with me, I greatly appreciate it. I have HS I & II, but no cold sore symptoms, just mild genital. I had bumps come up, but never blistered or opened into sores. The Purell so many are talking about, is that the hand sanitizer?

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Melody

oregano oil

What I do is apply it daily from the end of my tailbone them up my spine up to my waist. I also apply it behind my neck from the base of my skull to the shoulder blades. And I put 5 or 6 drops under my tongue at least 2 times a day, morning and night. This has definitely eliminated outbreaks.

I just had ob recently (although i haven't got my result yet) and i read through this website to find way eliminating further ob.

Could you advice me if this oregano oil is able to treat GH? How should i put it?

Thanks.

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freeheart

"Could you advice me if this oregano oil is able to treat GH? How should i put it?"

I have read a lot of information on this in the "Awareness" thread. You can do a search for Oil of Oregano and it will pull up the thread. Hope this helps.

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  • The Hive is Thriving!

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  • Posts

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      So ur saying the herbalife was the key?? Olive leaf extract and pro biotic are good? How many mgs of Lysine did you take a day? 
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    • nope1234
      okay! I guess I will just start at the basic dosage of vitamin C and go up every week little ? I take 1500 mg of super lysine like the bottle says and it still gives me gas and diarrhea. hoping it will pass if not I'll drop down to 2 a day! I really appreciate the advice! i know we would all.do ANYTNING to not have OB  at the moment idc about stigmas od boyfriends or dating or sex....I just care about FEELING healthy in my own skin. this is my one and only life 
    • Lulupazoola
      That sounds like a good place to begin.  The lysine worked really well for me for about a year and a half.  Then things got steadily worse for me and nothing worked until vitamin C.  My immune system is not that great even tho i take care of myself, so u may have good luck if u have a decent one.  With the vitamin c, u must 1) take it at intervals throughout the day, not all at once 2) dont increase the amount u r taking too fast 3) it will give u gas at higher doses and even diarrhea if u go crazy with it. These r signs to lower your dose!  If u can just control your OB's with vitamin c and lysine or anything else, maybe a cure will finally become available.  
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