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Stargazer40

Grateful for getting herpes???

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Stargazer40

I was just diagnosed in Feb of this year with herpes. At that time I also had a pap smear done that came back abnormal. This has happened to me a number of times in the past and I didn't really think anything of it when my doctor wanted to do further testing because of being newly diagnosed with herpes. The biopsy came back showing that I havecervical cancer and I got the dianosis this past monday.:cry: It is adenocarcinoma which accounts for only about 10 percent of cervical cancer where hpv is about 90 percent. I saw a specialist on thursday who in about the first two minutes of the visit informed me this is a very invasive and aggresive type of cancer and that I had not gotten treatment I would be dead in six months. It was the herpes that brought me in to see my gyno otherwise with everything that was going on in my life at the time getting a yearly check up was the last thing on my mind. Suddenly I have something to be extremely grateful for about this whole experience with contracting herpes.:shock:

I am 39 and have been very healthy up until now. I am extremely scared and didn't know if anyone else out there had a similar experience or can offer advice. I haven't really given herpes much thought in this last week other than knowing that the stress I am feeling right now can't be good and was wondering if anyone has any suggestions on what I can do to counteract the stress. Just trying not to be stressed isn't going to work at this point. My surgery is this Wednesday and if any of you pray I would greatly appreciate your prayers. I may not be able to be on for support much until after I get home from the hospital. I am also wondering if you are able to have computers in the hopsital . . does anyone know?

I am having a radical hysterectomy and was told I will be in the hospital for about a week. I am in good shape so they are optimistic about my recovery process. I am a little concerened that when they go in to do the surgery they will find it has spread to the lymph nodes and if that is the case he will only remove the lymph nodes and I will have to go back in three months for the hysterectomy. I am desparately hoping that is not the case. I have not had any children (although I do have three step children that I have raised since the oldest one was five). The only surgery I ever had was a dnc, and have a major phobia about hospitals. I have been known to pass out when I just go and visit someone.:oops:

My gyno did mention herpes can cause cancer however, she said she didn't think that was the case here because I was just recently diagnosed. I know it was the primary outbreak because I pretty much had a textbook case when it came to all the symptoms I experienced. I have been to afraid to ask any further questions about it because of thinking than that this cancer is my own fault. I am still struggling with that quite a bit actually. Unfortunately when I saw the specialist I knew my gyno explained the situation and he saw my chart but I couldn't even bring myself to talk to him about it because there was another nurse in the room and still struggle with the stigma associated with herpes. I am thinking I am going to give the doctor a call and express my concerns about exactly what if any connection is there between the two, but thought maybe some of you might be able to help in that area also.

I am very grateful for this site and for all of the support here. I appreciate the kindness expressed by so many members. Without it I can't even think of where I would be.

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livewithit

I will pray for you

stargazer, I just want to let you know my uncle who diagnosed cancer in his nose about 10 years ago. He did a surgery and he is still pretty healthy up to now. You find early and you are very health, I think you will be ok. I will pray for you while you are in the hospital.

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MsLucy

To tell you not to be afraid would be to make light of what you're going through, so I won't do that. But I will tell you that the good thoughts and positive energy of everyone here will be going to the hospital with you, and will stay with you until you've seen this through.

We're all stronger and braver than we think we are when we have to be. You will be, too, I know. Try to keep a positive attitude, and we'll all be hoping along with you that there are no complications. Your age and health, and the fact that you found it early, are in your favor. Those are all good things.

Let us know, when you're able to, how you're doing. In the meantime, we'll keep you close to our hearts. Hugs.

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helied2me

Hi Stargazer,

My thoughts and prayers will be with you as you go through your surgery and recovery.

Although I didn't have the same diagnosis, I too had a hysterectomy because of cervical cancer and I know the anxiety you are probably feeling right now. You are strong and you will get through this latest trial.

I am not computer savvy so I don't know how to imbed links but if you google HSV and cervical cancer and go to the cancer.org link you will see that the correlation between the two are not as definitive as some doctors believe. There is quite a bit of info on the subject and it should answer your questions.

Best wishes for a quick recovery and let us know how you are doing as soon as you feel up to it. Take care sweetie.

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chay5

Yes, I think it is definitely good that because of your herpes (not a deadly condition) testing, a much more serious condition such as cancer got discovered early and not too late. As crazy as it sounds I cannot help but agree with you that thanks to having herpes - they will be able now to remove your cancer and you will be able to live your life much longer.

It is hard to say don't worry to someone who is about to have an operation, but the truth is that you are young, medical care and surgeons are good and such procedure is quite frequently performed. Any operation is important, of course, but I would be probably more scared of any operation on the heart such as a by-pass surgery... Remember Regis Philbin - he just had bypass surgery last year and was back working quite soon, and he is MUCH older than you are and the operation sounded more serious. Your prospects are very, very good. So please continue to look at it rather as a great opportunity for your body to have something bad removed early enough.

Take it easy, think positive and perhaps make some plans for the future on how to treat yourself to something nice once you recover? Don't forget to bring some good reading material to the hospital with you :D And yes, I wish you all the best and will pray for your speedy recovery :):):)

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tothefuture

I was categorically told by both my GP and Consultant that this virus does not cause cancer.

I wish you well - I was ready to disagree with you and say NO!, there are no reasons EVER to be grateful for gettting this. But I would have been wrong!

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Stargazer40

Thanks for the responses and support. Helied2me, can you tell me how long ago you had your surgery and what your experience was through this. Did you have to go through chemo or radiation? It is encouraging just to hear that you survived and thanks for the link to research the two. I am going to do that now.

tothefuture, I can hardly believe i typed those words myself. Thanks for the support.

Chay5 I like your idea about making plans for the future. I have two classes I need to finish in order to get my bachelors degree. I also was going to cancel a trip to Europe with my daughter. Her college soccer team is going for a few weeks over the summer and i was going to tag along, but because of financial concerns we were going to cancel. Now I think I will reconsider...

writercll and livewithit, your posts brought tears to my eyes. thanks for the support.

It is comforting just knowing all you guys are praying and pulling for me. I will keep you posted and write when I can. Tomorrow is a full day of testing.

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helied2me

Girl, with that attitude you are going to do just fine, I'm glad you're still considering the trip to Europe with your daughter, I'm sure she'd love to have you there with her.

I contracted HPV at 18 and it was 7 or 8 years later that I got the cancer diagnosis. I already had 2 children and the cancer was caught very early. I was given 3 options for treatment, freezing, conization (sp?), where they cut a cone shape area of tissue from the cervix, or a hysterectomy. I chose the hysterectomy for the best possible chance of not having a recurrence.

The doctor did tell me that if there was any sign of cancer in the ovaries they would take those also even though it was the early stage but he didn't want me waking up to any surprises. Fortunately, that didn't happen and I haven't required hormone replacement.

My surgery required a bikini cut approximately 7 in. wide and I won't lie, I had some discomfort for about 6 months and felt almost normal at the 1 year mark, but it was all worth it for the peace of mind it gave me.

Chemo and radiation therapy never entered the picture and it has been 23 years next month.

Good luck tomorrow, hun.

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seashell

(((((((((((((((((stargazer))))))))))))))))) You're in my thoughts w/ your surgery. My heart goes out to you. I have hpv and had cervical cancer in my young 20's and am now dealing w/ cervical cancer again at age 40. Of course, I also have herpes. I've been thru many surgeries, procedures,etc. You can do it. I know it's scary and not fun, but you will get through it. You're not alone. Hang in there and let us know how you are as soon as you are up to it. Take care.

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helied2me

Hi seashell,

I'm sorry to hear that you are going through this again. If you don't mind me asking, how were you treated before and how are you being treated this time? If you'd rather not talk about it, that's OK too.

You will be in my thoughts, along with stargazer, and hopes for a full recovery for both of you.

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justhere

if this helps....my grandmother is 60 and was bleeding for about 6 months and i told her that was a sign of cancer well it happend to be same situation you are in, and she has gone through the ENTIRE surgery, healing, doctors (no herpes) but she has drug addict kids 30 and still stressing her out type of kids and she is a massive worrier and she babysits my son while i work or school anyway after all is said and done she is depressed and all and has been as far as we know cancer free all you have to do is join the groups the hospital may send you to and keep in mind there is life after cancer....i myself had a c-section with my son it was pretty bad i was sick after for about 2 weeks and the sergury part was terrible (didnt have herpes at this time) but you will make it, and you just let the nurses take care of you and listen to your body okay good luck

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Stargazer40

update

Hi everyone,

it has taken me a little longer than i would have liked to get back and post. The surgery was a success in that he was able to remove everything that day, including 28 lymph nodes that he sent out to be tested. Each and everyone came back negative and the margins were also clear which is a good thing.:D However, because of the agressiveness of this type of cancer, (adenocarcinoma clear cell) I will still need to have radiation and chemo.:cry: My doctor also changed the stage to 2B. I don't find out about the particulars until the middle of may because they wanted to give my body the opportunity to heal.

My recovery has been going fairly well, with one setback. My bladder has yet to "wake up" from the surgery so I have to have a catheter.:cry: This is fairly common due to the severity of the surgery and hopefully within a couple of weeks it should be working and I can have it removed.:D

I just wanted to again express my gratitude for everyone who has kept me in their thoughts and prayers. i consider myself to be very fortunate- all things considered.

Through all of this it has also put herpes in a different light. I did finally bring myself to talk to the doctors about it, and each of them barely blinked an eye about it. My oncologist did tell me that this was of no concern to my health. I know that it is a terrible inconvenience as i did have an outbreak in the hospital but i was not going to let it bring me down.

i think part of my attitude comes from knowing that herpes brought me to the doctor that led to my cancer diagnosis in time to save my life, (for which i still am and believe i will always be grateful) and part of it is just keeping herpes in perspective to what it really is. Which one thing it is definitely not, is life threatening.

Seashell, I too would like to hear about your experience if you are up for sharing. I will keep you in my prayers as well.

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helied2me

Welcome back Stargazer,

I've been waiting to hear from you and I'm so happy everything else looks good so far. I kind of suspected you may have to have chemo and radiation considering it's an aggressive form of cancer but it's the best thing you can do. I sure hope your bladder wakes up soon, I'll bet you'll be glad to be rid of that!

Thanks for the update and congratulations on the successful surgery. Now just take it easy and get well for the next battle sweetie.

Talk to you soon.

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alwaysalone

I just read all these posts and it has blown me away. I could not imagine having to do that stuff. I am a pretty big guy and not afraid of many things but doctors are one of my biggest fears. I am so happy it has gone ok with you and I hope for nothing but the best in your future. I am starting to wonder if girls are just basically stronger than guys with the *&^% you have to put up with. Good luck to all of you.

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helied2me

That's a fact alwaysalone, guys could never handle the pain of childbirth, we were built to be stronger for a reason, lol.

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