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werad

18 month old w/ herpes?

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werad

My daughter is nearly 18 months old. She was really sick during Jan and Feb and I am pretty sure she was essentially immunocompromised when she was exposed. She had a slight yeast diaper rash right before the first outbreak. For the last 2 months she has had a few sores in her diaper area. They are on her upper outer labia and her leg near her groin. They have gone from a little sore to full blown blisters and back a few times, but haven't gone fully away. We just took her to the doc last Thurs and she immediately said it looks like herpes. We did do a test, but it was at the end of an outbreak and I am not sure we caught it in time. I am still i shock I think.

Doc did ask if my husband or I get cold sores, and yes we do. She said it could be transmitted as easily as touching our lips during an outbreak then changing her diaper. I feel sick that I probably did this to her. I am looking for stories of people getting a herpes outbreak on uncommon areas. I am scared because just due to the proximity of the outbreak, it could turn into genital herpes. She is a baby!! Please, someone reassure me.

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marriedwchildren

Dear werad,

My heart goes out to you and your family.

Your Doc is accurate it can pass from just touching a lip to the genital area. Did your Doc do a swab culture on these blisters? It is true that swab cultures are more accurate when done within the first 24-48 hours of seeing a lesion. As far as uncommon area of infection genital herpes can show up any where they call the boxer short area. I have heard some people get outbreak on there bum, thighs, bellies and even on their rectums. Not all genital herpes have to be in the genital area just below the waist and in that boxer short area. I know this is alot to comprehend, it can get mind boggling thats for sure. But please do not blame yourself for any of this, it may not even be herpes, doctors are often wrong with a visual diagnosis of herpes. So just wait until the test results are back before you jump to conclusions. I know it will be hard, but keep getting all the information you can it will help you understand it much better. My prayers will be with you and your family, if you need to private message me please do, take care sweetie and i wish you well.:p

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ginnyp

Not to scare you or anything, just wanting to give some advice. Since she is so young, if this is a new infection, she will not have built up antibodies yet to fight the infection from spreading to other areas. I think it is important to keep the area covered up so she doesn't touch herself and then touch her face or eyes. If she got the virus from a cold sore, it is probably type 1 (usually oral herpes but can infect genitals). You will want her to build up antibodies to it so she doesn't spread the infection. When an infection does spread to the eyes (ocular herpes) it is most often caused by type 1. I hope your results come back negative, but if they do not, please read up on all the information this site has to offer, it is a very good site and has a lot of knowledgable people that can help you with any questions. My thoughts are with you!

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werad

This time, the lesions started to show Wednesday night. We had our first doc appt Thursday afternoon. There was some confusion about what test, who had to collect it, and where it was to go (since they have never delt with thins at her Pedi), so we didn't actually get the test done till Friday afternoon. They basically "unroofed" the blister and swabbed the fluid.

Thanks for the advice about keeping it covered. She usually runs around naked at home. I will try to keep her diapered till we have this figured out.

Does anyone know the effectiveness of using like "abreva" on hte lesions? I am a little apprehensive about trying it on her since she is so young, but I am more concerned about her spreading it to other areas.

Also, my dad used to get canker sores every time he drank orange juice. He has started taking L-lysine and swears by it. He says he hasn't had an outbreak on a long time since taking it daily. Anyone know the effectiveness of this?

One big concern I have it that IF this is type 1, how easy would it be to mutate into type 2? Being in the genital region already, this scares me more than anything. I don't even now how you would deal with a baby with type 2.....

Waiting on the test results is the hardest part so far. I am going through phases of being fine and then crying the next minute. This poor kid is so young and is already DX with multiple food allergies, eczema, asthma, and now this. Uh....

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ginnyp

Yes, keeping it covered is optimal since the virus is very infectious when there are sores present.

Lysine is a supplement that helps to reduce instances of herpes outbreaks. If it works for canker sores as well (which are not herpes) that is a plus. I don't know how much lysine you'd want to give a child though.

As for type 1 versus type 2 - they cannot mutate into each other. If your daughter has type 1 on her genitals, it will always be genital herpes type 1. They are two different viruses. Type 1 prefers the mouth BUT can also infect the genitals. Please keep in mind that about 80% of the population has type 1 orally. And about 25% of women have Genital Herpes, whether it be type 1 or type 2. If your daughter does indeed have genital herpes chances are when she is grown up she will not get anymore outbreaks. The longer you have it, the less chances and less severe the outbreaks. But she will still carry the virus and will need to learn about it as she gets older. I hope this information helps! Take care,

Ginny

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helied2me

Hi werad,

I'm so sorry that your baby is going through this. I just wanted to ask if your doctor mentioned the possiblity that it might be impetigo. It's a staph infection that causes blisters and is highly infectious if you come into contact with it through touching it or towels or bed linens which it might come in contact with. It is easily cured with antibiotics, my daughter had it as a baby.

I hope this is what it is so that she doesn't have to deal with it throughout her life. Try googling it and see if it resembles the pics.

Good luck with the diagnosis, hope she feels better soon. Let us know how it works out.

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ginnyp

That is very reassuring heliedtome, I don't know anything about babies so I wouldn't have even thought of that! Hopefully one day I'll have my own little one to worry about... :)

I hope this is the answer for you Werad!

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chay5

With babies, there are all sorts of possibilities. My kid had eczema (that looked not quite like eczema) and we went to see lots of specialists because of this- after one year of various treatments with no results I asked the pediatrician perhaps I should switch him to soy milk? To which he said: what?!? you haven't switched him to soy milk yet?!? He never told me... SO after we switched, the skin problems went away after a month or two.

My friends' twins had some kind of blisters when they were small, and I remember I was surprised she was not taking them to doctors because of this, she would just put some baby powder or nothing there - all this went away too. At that time I didn't know much about herpes but now I think it could have been that.

I am sure the pediatrician will tell you what to do, even though 18 months is very young - it is not like a total baby stage - if there were any suspicions that the condition is serious - the doctor would have sent her to the hospital. Anyway, maybe it will go away and never come back, unfortunately once out of womb, kids have to catch all sorts of bugs to develop immunity for this world...Please try to stay calm and please remember - as they say, real problems will start when kids become teenagers - :)

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werad

It really doesn't look like impetigo. It is 3-4 blisters that keep reoccurring in the exact same spots. I do hope it is something else though.

She has eczema and again, this is not that.

She does have many allergies (both cow milk and soy being among them). I *think* we have them under control with an elimination diet that both she and I are following as she is still breastfed as she can't have any other form of milk.

I did read up on the "how the virus works" page here and it has cleared up a few things for me. Oh, how wonderful the internet is. Just waiting for an answer now......

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helied2me

Hopefully you'll know soon werad, please give us an update when you find out. I hate to see babies suffer.

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